START_30 Col 9698 Character 4 Set Start Time Freq Value Label 1273 - Time: HHMM ***************************************************************** 1. How long ago did you start taking care of [sample person]... CWS_1A Col 9702 Character 1 a ...because of [sample person]'s disability? Freq Value Label 61 1 Less than 3 months 65 2 3 months - less than 6 months 102 3 6 months - les than 1 year 168 4 1 year - less than 2 years 243 5 2 years - less than 4 years 277 6 4 years - less than 7 years 93 7 7 years - less than 10 years 209 8 10 years or more 13 D Don't Know 29 R Refused to Answer 1260 - Total CWS_1B Col 9703 Character 1 b Do you provide more care, less care, or the same amount of care now as you did then? Freq Value Label 602 1 More 128 2 Less 489 3 Same 11 D Don't Know 30 R Refused to Answer 1260 - Total CWS_1C Col 9704 Character 1 c How long ago did you start taking care of [sample person] as much as you do now? Freq Value Label 72 1 Less than 3 months 69 2 3 months - less than 6 months 122 3 6 months - les than 1 year 145 4 1 year - less than 2 years 148 5 2 years - less than 4 years 105 6 4 years - less than 7 years 19 7 7 years - less than 10 years 47 8 10 years or more 3 D Don't Know 730 - Total ***************************************************************** 2. We are interested in knowing more about the kinds of people who give care. The next few questions are about you. CWS_2 Col 9705 Character 2 2a How old are you? Freq Value Label 218 15-49 Years of Age 264 50-59 Years of Age 247 60-69 Years of Age 270 70-79 Years of Age 151 80-99 Years of Age 18 D Don't Know 89 R Refused to Answer 1257 - Total CWS_2B Col 9707 Character 1 b What is your current marital status? Freq Value Label 864 1 Married 88 2 Widowed 121 3 Divorced 22 4 Separated 115 5 Never Married 7 6 Partnered, not married 9 D Don't Know 31 R Refused to Answer 1257 - Total CWS_2C Col 9708 Character 1 c INTERVIEWER: IS CAREGIVER MALE OR FEMALE? Freq Value Label 370 1 Male 864 2 Female 6 D Don't Know 17 R Refused to Answer 1257 - Total ***************************************************************** 3. Are you currently working... CWS_3A Col 9709 Character 1 a ...for pay at a job or business? Freq Value Label 394 1 Yes 830 2 No 7 D Don't Know 26 R Refused to Answer 1257 - Total CWS_3B Col 9710 Character 3 b How many hours per week do you usually work? Freq Value Label 382 2 35-160 Hours 6 D Don't Know 6 R Refused to Answer 394 - Total CWS_3C Col 9713 Character 1 c Are you working fewer hours than you would like to because you help [sample person]? Freq Value Label 25 1 Yes 62 2 No 4 D Don't Know 5 R Refused to Answer 96 - Total ***************************************************************** 4. Have you ever worked... CWS_4A Col 9714 Character 1 4a ... at a job for pay? Freq Value Label 693 1 Yes 128 2 No 7 D Don't Know 35 R Refused to Answer 863 - Total CWS_4B Col 9715 Character 1 b How long ago did you stop working at your last job? Freq Value Label 26 1 Less than 3 months 10 2 3 months - less than 6 months 16 3 6 months - les than 1 year 50 4 1 year - less than 2 years 66 5 2 years - less than 4 years 86 6 4 years - less than 7 years 62 7 7 years - less than 10 years 357 8 10 years or more 7 D Don't Know 13 R Refused to Answer 693 - Total CWS_4C_1 Col 9716 Character 1 c What was the MAIN reason you stopped working at that job? Freq Value Label 362 1 Retired 82 2 Ill/disabled 64 3 Had to take care of [sample person] 74 4 Wanted to take care of home/family to (other than sample person) 11 5 Fired/Laid off 4 6 Went (back) to school 89 7 Other - Specified in CWS_4C_S (blanked out) 1 D Don't Know 6 R Refused to Answer 693 - Total CWS_4D Col 9717 Character 1 d Would you have continued working longer if you were not taking care of [sample person]? Freq Value Label 22 1 Yes 336 2 No 1 D Don't Know 3 R Refused to Answer 362 - Total CWS_CK2 Col 9718 Character 1 [ Refer to 4b and 1a ] Did caregiver stop working BEFORE he/she began caring for sample person? Freq Value Label 419 1 Yes 291 2 No 710 - Total ***************************************************************** 5. Have you ever worked fewer hours a week at a job than you wanted to because... CWS_5A Col 9719 Character 1 5a ...you were taking care of [sample person]? Freq Value Label 95 1 Yes 543 2 No 6 D Don't Know 9 R Refused to Answer 653 - Total CWS_5B Col 9720 Character 1 b How long ago did this happen (the last time)? Freq Value Label 29 1 Less than 3 months 5 2 3 months - less than 6 months 13 3 6 months - les than 1 year 15 4 1 year - less than 2 years 17 5 2 years - less than 4 years 6 6 4 years - less than 7 years 5 7 7 years - less than 10 years 4 8 10 years or more 1 D Don't Know 95 - Total ***************************************************************** 6. Have you ever had to rearrange your schedule at a job because... CWS_6A Col 9721 Character 1 6a ...you had to take care of [sample person]? Freq Value Label 212 1 Yes 451 2 No 6 D Don't Know 9 R Refused to Answer 678 - Total CWS_6B Col 9722 Character 1 b How long ago did this happen (the last time)? Freq Value Label 84 1 Less than 3 months 22 2 3 months - less than 6 months 28 3 6 months - les than 1 year 18 4 1 year - less than 2 years 25 5 2 years - less than 4 years 16 6 4 years - less than 7 years 7 7 7 years - less than 10 years 11 8 10 years or more 1 D Don't Know 212 - Total ***************************************************************** 7. (Besides what you have already told me) Have you ever had to take time off without pay from a job because... CWS_7A Col 9723 Character 1 7a ...you had to take care of [sample person]? Freq Value Label 111 1 Yes 552 2 No 6 D Don't Know 9 R Refused to Answer 678 - Total CWS_7B Col 9724 Character 1 b How long ago did this happen (the last time)? Freq Value Label 36 1 Less than 3 months 10 2 3 months - less than 6 months 17 3 6 months - les than 1 year 20 4 1 year - less than 2 years 11 5 2 years - less than 4 years 8 6 4 years - less than 7 years 4 7 7 years - less than 10 years 5 8 10 years or more 111 - Total CWS_7C_N Col 9725 Character 2 Number: Freq Value Label 3 00 Amount 30 01 Amount 33 02 Amount 15 03 Amount 7 04 Amount 3 05 Amount 1 06 Amount 6 08 Amount 1 09 Amount 1 11 Amount 1 12 Amount 1 18 Amount 2 20 Amount 7 D Don't Know 1 R Refused to Answer 112 - Total CWS_7C_U Col 9727 Character 1 Units: Freq Value Label 30 1 Hours 42 2 Days 21 3 Weeks 10 4 Months 7 D Don't Know 1 R Refused to Answer 111 - Total ***************************************************************** 8. Have you ever had to quit a job because... CWS_8A Col 9728 Character 1 8a ...you were taking care of [sample person]? Freq Value Label 58 1 Yes 605 2 No 6 D Don't Know 9 R Refused to Answer 678 - Total CWS_8B Col 9729 Character 1 b How long ago did this happen (the last time)? Freq Value Label 8 1 Less than 3 months 1 2 3 months - less than 6 months 2 3 6 months - les than 1 year 18 4 1 year - less than 2 years 11 5 2 years - less than 4 years 7 6 4 years - less than 7 years 3 7 7 years - less than 10 years 8 8 10 years or more 58 - Total ***************************************************************** 9. For whom... CWS_9B Col 9730 Character 50 b What kind of business is this or was this? Freq Value Label 975 - Verbatim Responses, Not Recoded 23 D Don't Know 89 R Refused to Answer 1087 - Total CWS_9C Col 9780 Character 50 c What kind of work are or were you doing? Freq Value Label 968 - Verbatim Responses, Not Recoded 29 D Don't Know 90 R Refused to Answer 1087 - Total CWS_9D Col 9830 Character 90 d What are or were your most important duties? Freq Value Label 964 - Verbatim Responses, Not Recoded 30 D Don't Know 92 R Refused to Answer 1086 - Total CWS_9E Col 9920 Character 1 e Are you or were you: Freq Value Label 706 1 An employee of a PRIVATE company, business, or individual for wages, salary, or commission? 35 2 A FEDERAL government employee? 62 3 A STATE government employee? 108 4 A LOCAL government employee? 110 5 Self-employed in your OWN business, professional practice or farm? 17 D Don't Know 48 R Refused to Answer 1086 - Total CWS_9F Col 9921 Character 1 f Is this business incorporated? Freq Value Label 21 1 Yes 88 2 No 1 R Refused to Answer 110 - Total CWS_9G Col 9922 Character 1 g Is this or was this a nonprofit organization? Freq Value Label 94 1 Yes 600 2 No 8 D Don't Know 4 R Refused to Answer 706 - Total ***************************************************************** CWS_10 Col 9923 Character 1 10 Has taking care of [sample person] ever kept you from looking for a job? Freq Value Label 119 1 Yes 1080 2 No 16 D Don't Know 41 R Refused to Answer 1256 - Total ***************************************************************** 11. Have you ever had to turn down a job because... CWS_11A Col 9924 Character 1 a ...you were taking care of [sample person]? Freq Value Label 67 1 Yes 1133 2 No 14 D Don't Know 42 R Refused to Answer 1256 - Total CWS_11B Col 9925 Character 1 b How long ago did this happen (the last time)? Freq Value Label 16 1 Less than 3 months 5 2 3 months - less than 6 months 8 3 6 months - les than 1 year 14 4 1 year - less than 2 years 10 5 2 years - less than 4 years 9 6 4 years - less than 7 years 2 7 7 years - less than 10 years 3 8 10 years or more 67 - Total CWS_CK3 Col 9926 Character 1 [Refer to 3a, 4a, and 4b] Is caregiver currently or did caregiver ever have to work and take care of the sample person at the same time? Freq Value Label 687 1 Yes 582 2 No 1269 - Total ***************************************************************** 12. In your experience as both a worker and caregiver, did you ever... CWS_12_1 Col 9927 Character 1 a Have to go from working full time to part-time? Freq Value Label 58 1 Yes 599 2 No 7 D Don't Know 12 R Refused to Answer 676 - Total CWS_12_2 Col 9928 Character 1 b Have to take a less demanding job? Freq Value Label 38 1 Yes 619 2 No 7 D Don't Know 12 R Refused to Answer 676 - Total CWS_12_3 Col 9929 Character 1 c Have to turn down a promotion? Freq Value Label 26 1 Yes 631 2 No 7 D Don't Know 12 R Refused to Answer 676 - Total CWS_12_4 Col 9930 Character 1 d Choose early retirement? Freq Value Label 35 1 Yes 622 2 No 7 D Don't Know 12 R Refused to Answer 676 - Total CWS_12_5 Col 9931 Character 1 e Lose any job? Freq Value Label 25 1 Yes 632 2 No 7 D Don't Know 12 R Refused to Answer 676 - Total CWS_CK4 Col 9932 Character 1 [Refer to 3a] Is caregiver currently working? Freq Value Label 401 1 Yes 867 2 No 1268 - Total CWS_12B Col 9933 Character 1 f How would you rate your employer's attitude toward the demands of your caregiving: Would you say they were very understanding, somewhat understanding, or not very understanding? Freq Value Label 12 1 Not very understanding 60 2 Somewhat understanding 228 3 Very understanding 58 4 They were not aware of it 26 D Don't Know 9 R Refused to Answer 393 - Total ***************************************************************** 13. From your own personal experience, how much do you agree or disagree with the following statements about your present work situation? In the last 2 months or so: CWS_13_1 Col 9934 Character 1 a You have had less energy for your work. Freq Value Label 117 1 Strongly disagree 156 2 Disagree 79 3 Agree 21 4 Strongly Agree 11 D Don't Know 9 R Refused to Answer 393 - Total CWS_13_2 Col 9935 Character 1 b You have missed too many days. Freq Value Label 179 1 Strongly disagree 166 2 Disagree 21 3 Agree 7 4 Strongly Agree 11 D Don't Know 9 R Refused to Answer 393 - Total CWS_13_3 Col 9936 Character 1 c You have been dissatisfied with the quality of your work. Freq Value Label 165 1 Strongly disagree 163 2 Disagree 39 3 Agree 6 4 Strongly Agree 11 D Don't Know 9 R Refused to Answer 393 - Total CWS_13_4 Col 9937 Character 1 d You worry about [sample person] while you are at work. Freq Value Label 99 1 Strongly disagree 117 2 Disagree 121 3 Agree 37 4 Strongly Agree 11 D Don't Know 8 R Refused to Answer 393 - Total CWS_13_5 Col 9938 Character 1 e Phone calls about or from [sample person] interrupt you at work. Freq Value Label 164 1 Strongly disagree 156 2 Disagree 44 3 Agree 10 4 Strongly Agree 11 D Don't Know 8 R Refused to Answer 393 - Total ***************************************************************** END_CWS Col 9939 Character 4 Set End Time Freq Value Label 1268 - Time: HHMM CUML_CWS Col 9943 Character 4 Subtract CWS start time from CWS end time Freq Value Label 1267 - Time: HHMM *****************************************************************